Linking government administrative data with CARTaGENE data enables passive health follow-up of participants and the generation of integrated health indicators to support research in accordance with data access policies.
Linkage to administrative health data
Status
Ongoing
Start date
2013-11-28
Sample size
All participants
Study objective
Long-term follow-up of participants' health
Description
Administrative data from government databases enable passive health follow-up of participants. All participants have consented to the linkage of their questionnaire data, physical measurements, and other information with their administrative records.
These administrative data are used to generate a variety of health indicators from government databases, including MED-ÉCHO, the Quebec Cancer Registry, and others. These indicators are then integrated with the other data available through the CARTaGENE project and made available to researchers in accordance with CARTaGENE’s Data Access Policy.
